Susan gives back to others with dementia

May 19, 2025

“My dad, my aunty and my grandmother all had Alzheimer’s disease,” says Susan who is a participant and volunteer at CatholicCare’s Memory Innovations Centre (MIC). “I thought there was a chance I may get Alzheimer’s one day, but what I didn’t expect was to receive a diagnosis in my 50s. It was a surreal feeling because I felt fine, and I still do. But that’s the thing with Alzheimer’s. You think you’re fine, but the rest of the world knows you’re not.”

Susan started attending classes at the Memory Innovation Centre over two years ago. “I have gained so much in that time,” Susan says. “Every day I use the strategies I’ve learnt to help my short-term memory. I love the people there. I love the atmosphere. It’s a safe place where it’s OK not to remember stuff.”

Before commencing Brain Games classes, Susan participated in a study at Sydney University’s Brain and Mind Research Centre. “I had an MRI scan and cognitive tests done two years ago, which established what the problems were. Since then, I’ve been doing Brain Games classes every week and I go home and practice the puzzles I have difficulties with. I also incorporate physical exercise into my daily routine.

“Two months ago, I went back to have the same tests done, and they were surprised to find that there was no change in two years. I believe that these classes have been a real contributor to me not deteriorating.”

Memory Innovations Centre instructor, Jacqui describes Susan as highly intelligent and dedicated to supporting others in the group. When Jacqui was looking for a volunteer to help with her Wednesday class, Susan was the obvious choice. Her first-hand experience and empathetic nature made her uniquely suited to this role.

Jacqui says that Susan’s contribution to the class is invaluable. “During the class she will help clients who haven’t heard or understood something. Susan understands the complexity of dementia and the different ways it presents itself. The clients really enjoy the generous way she assists others and shares her own experiences.”

Given her diagnosis at a young age, Susan encourages younger members of her family to be proactive with their brain health. “I tell everyone about Brain Games!” Susan says.

“The Memory Innovations Centre is so successful because of the strong women at the helm. It’s amazing what CatholicCare has developed,” she says.

Susan is determined to maintain and improve her cognitive functioning as she navigates life. Given her own challenges, Susan’s dedication to supporting others is truly commendable.